Tag Archive | Summer

Femoral Rotations and New Information

This week has been a challenge. Madison is starting to learn balance and walk without her crutches. This is the first time watching her walk since her surgeries back in May and we’ve been a little concerned. Her waddle is that of an old lady or something that is not of this world. At first it’s a bit comical but as I was trying to help her figure out how to walk “normal”, we realized that her right hip is considerably higher than the other. Of course this involved an email into her surgeon to find out if this is normal.

We had to wait until Monday to find the answer and all of the information was rather interesting, to say the least. And the following information is for femoral twists only. I’ve heard the TYPE of surgeries she had are for MANY different problems/complications but what I’m going to go into now is related only to the femoral twists that these kiddos are born with.

So because her thigh bones were twisted, her hip flexors rotated her legs when she walked. This is how she learned how to walk, run, jump and play; her body not knowing that this wasn’t normal. Now that she’s had her legs corrected, her hip flexors are having to re-learn how to move and engage which is causing her waddle. She literally doesn’t know how to walk, ie. swing her hips, which is how we all normally walk.

This completely changes the dynamics of her entire body. If affects her lower legs, obviously her thighs and hips, her lower back, her shoulders. Yep, her entire body. Most of the time she’s pretty light-hearted about all of this and she’s a pretty amazing kid but we still have our breakdown moments when she’s tired, or hurting, or even tired of not being able to walk the way she used to. What’s also very interesting is that the breaks in her thighs are just now starting to cause her pain and discomfort. I had thought we were done with the wheelchair but we will be taking it with us on our out-of-town trip that’s coming up.

My biggest advice at this time is patience and listen to your kiddo. Their fears, frustrations, worry and pain are with them 24/7 which is so easy to forget when we climb into bed. We aren’t living with it so we don’t know it as intimately as our kiddos do. Sometimes I just pull her aside when no one else is around and I let her vent. She can swear, cry, yell, laugh, anything she wants to because this human of mine is dealing with a LOT. This world has a lot of sharp edges in it, I want to be the safe place for her to land every time.

I have quite a few videos of how she moves and walks if you would like to see over on my Facebook page. Unfortunately I can’t upload any videos here or I would. My Facebook page is https://www.facebook.com/raeanne.hadley. Have a great weekend and keep up the amazing love and strength!

Summer Blues…and greens.

I have to admit that at the beginning of the summer, I fell into the summer blues. Sadness is not a normal emotion for me, being nicknamed Miss Suzie Sunshine, and I struggled with this unfamiliar emotion more than a few times within a couple of months. Because of this sadness, I began to doubt all of my decisions, my actions, and my life’s purpose. I wondered who I was because the things I had desired ten years ago were no longer important. Because of having to deal with satellite internet with our move, I was forced to spend less time on the internet and more time with myself and my thoughts. I know, a dangerous combination!

 

For the first couple of months I bombarded my friends with my tearful declarations of wanting to move back into town, that I was no longer a country girl, that I missed the conveniences of town. Then I fell into seclusion due to the fact that the house we are buying has SO much trash everywhere and my beloved Quarter horse gelding, Diego, was seriously injured. I had to start cleaning up the property to keep my animals safe. While dealing with the property, we’ve also dealt with severe draught and fire conditions, the worst our town has seen since 1978, so I’m told by the locals, and having to downsize our horses to two because of the hay shortage. I also decided to have this huge garden, help my husband build a new chicken coop and clean up the one building I love the most, the garage.

 

It’s during this time that I’ve watched my daughters play in the lower horse pasture, acres and acres of freedom, laughing and running and having a blast. I have no worries about someone driving by and snatching them, we live on a dead-end country road. I started to notice that my husband and I talked more about little things, dreams, the future and we enjoyed just sitting outside listening to nature, not cars and sirens. We watched does and their babies feed along side of our horses and a bachelor of bucks wander down and try and nibble at our trees. I’m picking out areas for my patio area where we are going to build a fire pit with horseshoe pits, volleyball and other entertainment so that our friends will feel welcome and have fun when they come over.

 

I will admit I haven’t written as much as I had intended to but I honestly believe I’ve gone through another growth in my life. We are always learning and this was a doosey for me. I am still a country girl, I appreciate the conveniences of the city but I can adapt without them just fine. I thought that I had learned my large life lessons but I now know I was wrong. You’re never too old to have your life turned upside down and have to re-evaluate where you are. Remember, life is meant to be fun, enjoy the journey!