Tag Archive | pain

Femoral Rotations continued

Yep, I missed a week. Actually, I missed a couple of weeks. I felt guilty at first, for all of those who read this, that I was letting you down but I had to take some time for me. I didn’t get on social media or meet with any friends. I really needed to reassess my life because I was ready to end it. Yep, I said it. I was ready for the big D.

Friends, let me tell you, when you are down, vulnerable and exposed, there are souls who will come into your life disguised as kind people who want to be your friend and then take you to the cleaners. I must have sucker written across my forehead because I got scammed a couple times and the timing couldn’t be worse. So I needed time to lick my wounds and heal my soul. It’s still not healed but I feel stronger than I have…until today.

Madison’s four month post-op was today so she had to have x-rays done two weeks ago for her surgeon to see. Of course I took pictures and I’ll admit, I didn’t think they looked very good. I showed them to her physical therapist who agreed, they just didn’t seem right. Large lumps and stalactite looking bone formations surrounded her surgical breaks but nothing was filling in at the actual breaks. In another image, it appeared she had a fracture going through the center of some of her new bone growth. Again, not good. So the imagination takes over and you begin to wonder if she is going to have to have surgeries again, or if her bones never heal, would she have to endure grafts? It goes on and on. These were all questions we wanted her surgeon to answer. The least of our concerns were how her ankles turned in when she walked. Worry and stress about the x-rays were on the forefront of our hearts and minds. The appointment today couldn’t come fast enough.

So now we are an hour past her appointment and I have a migraine from the information I’ve received. We were completely wrong about her x-rays, which is WONDERFUL news. Everything is healing perfectly and she is on track. She was even released to start riding her horse again. Best news ever! Then he addressed the ankles. With the extreme inversion, we need to start with orthotics to see if that straightens her ankle/knee and hip alignment. If it doesn’t, she would need to go in for surgeries that are more extensive and complicated than the surgeries she just endured. He said they are way worse than her femoral rotations and he will do them if she needs them…but only as a last resort.

I’d like to end this on a happy note but today I can’t. I’m kind of over everything, if that makes sense. I’m over scammers, I’m over fake friends, I’m over doctors who should listen to parents when they bring their child in YEAR AFTER YEAR saying that something is wrong with their child when they walk/sit. I know I’m the only one who can get out of this funk and I will. I have two incredible girls who deserve to have the best mother possible. I just need to take the time for ME (away from the family so they don’t see my tears) and figure out HOW to get my big girl panties back up and be the Momma Bear next to my little warrior. Actually both of them because my Ashlie girl has been right there alongside every step of the way. What amazing girls I have.

So if your child is walking/sitting wrong and the doctor says it’s normal or they will “grow out of it” or they are just flexible or “double-jointed”, do you and your child a favor. Go get another opinion. Preferably from a professional from Children’s Hospital because the home-town docs I’ve experienced have too much of a God complex to give parents any credit. Take care of you and your family first, screw their feelings because they sure don’t care after the fact of what you and your child will have to endure.

Peace out and many blessings until the next time.

Femural Rotations, New Setbacks, Learning Grace

They say be careful what you wish for. I used to compliment how well some of my friends handle challenging or painful situations. I’m learning my grace through my daughter with her incredible recovery. We’ve had a second week of not-so-great news. While her surgeries were a success with rotating her legs into proper alignment, her feet are now causing issues. I’ll have a video posted on my Facebook page (seriously thinking of getting all of this on YouTube) but I took pictures for you to see.

When she walks, they angle in excessively. It’s so severe that it’s causing misalignment in her knees, hips and back. We are waiting to see if she can get lifts in her shoes or if it’s another skeletal issue. I’m hoping it’s a muscle issue and with strengthening, can re-align properly. Of course if this goes on too long, it can also cause damage to her knees, hips and spine. So we are going to address this next week.

On a good note, she’s been swimming with me and her younger sister three days a week in addition to her physical therapy. It’s allowing her to use and strengthen those new muscles without the pain of her body weight on her leg breaks. She’s absolutely thrilled to be active for HOURS without the excessive pain. The memebership at the Recreation Center in our town has honestly been a blessings and side win is it’s helping me get back in shape too! Win/win!

She’s camping out in our front yard with her friend and sister tonight. She missed Mountain Man Rendezvous this year so they are creating a little one for her tonight. God bless wonderful souls that have the hearts of mountains.

I hope you have a blessed weekend and thanks for listening!

Femoral Rotations and New Information

This week has been a challenge. Madison is starting to learn balance and walk without her crutches. This is the first time watching her walk since her surgeries back in May and we’ve been a little concerned. Her waddle is that of an old lady or something that is not of this world. At first it’s a bit comical but as I was trying to help her figure out how to walk “normal”, we realized that her right hip is considerably higher than the other. Of course this involved an email into her surgeon to find out if this is normal.

We had to wait until Monday to find the answer and all of the information was rather interesting, to say the least. And the following information is for femoral twists only. I’ve heard the TYPE of surgeries she had are for MANY different problems/complications but what I’m going to go into now is related only to the femoral twists that these kiddos are born with.

So because her thigh bones were twisted, her hip flexors rotated her legs when she walked. This is how she learned how to walk, run, jump and play; her body not knowing that this wasn’t normal. Now that she’s had her legs corrected, her hip flexors are having to re-learn how to move and engage which is causing her waddle. She literally doesn’t know how to walk, ie. swing her hips, which is how we all normally walk.

This completely changes the dynamics of her entire body. If affects her lower legs, obviously her thighs and hips, her lower back, her shoulders. Yep, her entire body. Most of the time she’s pretty light-hearted about all of this and she’s a pretty amazing kid but we still have our breakdown moments when she’s tired, or hurting, or even tired of not being able to walk the way she used to. What’s also very interesting is that the breaks in her thighs are just now starting to cause her pain and discomfort. I had thought we were done with the wheelchair but we will be taking it with us on our out-of-town trip that’s coming up.

My biggest advice at this time is patience and listen to your kiddo. Their fears, frustrations, worry and pain are with them 24/7 which is so easy to forget when we climb into bed. We aren’t living with it so we don’t know it as intimately as our kiddos do. Sometimes I just pull her aside when no one else is around and I let her vent. She can swear, cry, yell, laugh, anything she wants to because this human of mine is dealing with a LOT. This world has a lot of sharp edges in it, I want to be the safe place for her to land every time.

I have quite a few videos of how she moves and walks if you would like to see over on my Facebook page. Unfortunately I can’t upload any videos here or I would. My Facebook page is https://www.facebook.com/raeanne.hadley. Have a great weekend and keep up the amazing love and strength!

Femoral Leg Rotations and Parents Part 2

PART TWO

I didn’t want to leave anyone hanging over the weekend so I’m posting today. Today has been a super rough day. She had physical therapy first thing this morning and had difficulty even moving her legs off of the bed to get up. My vibrant, bouncy daughter is shuffling along like she’s ninety years old. Through the tears she smiles, never wanting anyone to feel uncomfortable around her. She is truly amazing.

So how is she walking with two broken legs? Because of the steel rods they inserted down through the center of her femurs, it allows her to relearn how to walk without having to wait for the bones to heal. She was up and walking the day after surgery, albeit it was only a couple of steps but pretty impressive.

What to expect if your child has to go through the surgery or surgeries. Physical therapy!! Get your child into physical therapy at least six weeks before they have their surgery done. Muscle, tendons and ligaments will need to stretch with this rotation, regardless of the degree of rotation so if they are flexible and limber before the surgery, the less damage is possible. It also helps rebound quicker after the surgery. Nerve endings. We were told that nerve endings do not stretch. They don’t have play in them and if they are stretched too far they snap, which can result in temporary or even permanent nerve damage. Madison’s rotations were a huge 25-degree rotation on each leg, five percent more than what they had anticipated. She has ZERO nerve damage. Doctors swear that the physical therapy couldn’t help that part but I don’t believe them. They don’t know everything, as we’ve already learned. I’m a huge advocate for the physical therapy before and of course, after.

Things you are going to need. A walker, a wheelchair, a potty chair for over the toilet, a shower chair and a bedroom with no stairs. They will tell you that your child will be getting up and walking right after surgery but it’s only a couple of shuffling steps. Madison struggled just standing up from the hospital bed, let alone walking very far. One of the other things we got was a belt. It’s specifically made to go around their chest and under their arms. It is wonderful for helping them stand since their balance is non-existent. I recommend gathering these things and bringing them home before the surgery. We drive a Nissan Rogue and live five hours away from Children’s Hospital. We were set up at the Ronald McDonald house just a mile from the hospital (though this momma slept on the pull-out sleeper in Madison’s room) and if there are any donators out there, please consider donating to the Ronald McDonald houses. They are truly a blessing for families.

Anywho, I digress. The four of us drove down for Madison’s surgeries and they had her equipment there for us to take home. There was so much that my husband had to rent a truck and he and our youngest daughter had to take half of it home with them. There was no way we were going to fit the equipment, luggage and bodies into that SUV of ours.

Also stock up on lots of things for them to do in bed. Madison spent a good amount of time playing her games online with her friends but even that gets old. She received a care package from a sweet friend that had crossword puzzles, thread to make friendship bracelets, spirograph and other fun goodies like that. I also bought her some modeling clay to make some sculptures.

I know I will have more tips and ideas to offer. Things that you think about after this is already done so if I can help you before the surgeries, then I’ll be a happy camper.

One other thing that I’d like to point out. You are going to go through a lot of emotions regardless if you’re a man or a woman. My husband wasn’t freaking out over the surgeries themselves but over the healing and pain afterwards. I was freaking out over the surgeries (what if something went wrong and she didn’t come out of anesthesia, lost her legs, lost feelings, etc. Mom brains are crazy) so it was great when we talked about our fears and concerns with each other because it allowed us to be strong during the times when the other person felt weak. So definitely lean on each other. You may not understand why the other person is freaking out over what you consider fine but the same may go for your partner. Just understand that you have different fears and concerns and you can be strong together.

Have a fantastic weekend and we will talk to you next week!