Yeah, the weekly thing just isn’t going to work. Kids are in school activities, Madison still has physical therapy 2-3 days per week and I’m still having to get my work done.
We spent the last couple of weeks getting fencing fixed so the horses had access to the barn and we had hay delivered. We still don’t have firewood in for winter but the truck broke down and was pretty costly to fix it. Will need to sell it before getting the half a cow in the freezer and wood in for winter.
Tomorrow marks the long awaited day for meeting with the ortho specialist coming in from Grand Junction. He will be the one who basically decides if he can make something for her to correct the rotation in her ankles. All of my hopes and prayers are on his saying yes. I’m trying to have faith that this doctor is as open and receptive as Dr. Rhodes has been.
There’s been lots of struggles and ups and downs. She has a popping in her bad hip but we aren’t having X-rays done at this time. Dr. Rhodes believes it’s an IT band that is rubbing and slipping off of her hip bone caused by the screw. She has to wait until May before they can remove the screws and the rods so basically she just has to deal with the pain. That’s super frustrating for me because it happens whenever she walks, goes up stairs, sleeps, moves, anything. She was finally released to ride her horse and we joyfully went out to our ponies and rode bareback; best way to get back in shape and core built up. I recorded it, of course, bawling with how wonderful it was to see her back on her beloved Chewbacca (the video is on my Facebook page) only to have the joy come to an abrupt end. The way her hips sit on her horse causes the screw to push into her hip bone which causes pain. A goal she had worked so hard for became something she can’t enjoy doing. We are going to try different saddles and hope that with the adjustment of her hips and the way she’s sitting, it will allow her to ride without so much pain.
New things that we found out. Sitting cross-legged is actually comfortable for her now. I was mortified and instantly pissed off when I found out that some elementary teachers tried to FORCE her to sit “criss-cross-applesauce” despite her saying it didn’t feel good. PEOPLE, FRIGGING LISTEN TO THE KIDS WHEN THEY SAY SOMETHING DOESN’T FEEL GOOD. I’m SO sick of adults MICRO-MANAGING KIDS! If they are sitting in a W shape and it’s comfortable to them then let them do it! YOU are NOT a doctor and there could be something majorly wrong! The more I’m researching this deformity the more common I’m finding it is. SO many kids having to go through this bullshit. Venting over.
I will say I’m grateful for all of my friends and support. For those of you going through this, hang in there. I know exactly how exhausting it is. Everyone on the outside looking in sees your child getting better, doing better but they aren’t there 24/7 when the swelling or the pain hits. The frustration your child feels when they can’t do something they used to do. New thing we just found out about. You know how Madison literally had to learn how to walk again? Her brain had to learn how to communicate with her new thigh muscles? Well guess what, it has to relearn how to run too. You would think the brain would click and go, “Oh yeah, I just opened up the communication lines to these new muscles to walk so it must be the same line for running.” NOPE. 5 months after surgery and she’s just now starting to learn to run. Her muscles on the outside of her thighs are trying to fire, not her new front thigh muscles. Can you imagine how frustrating that is? And all I can do is hold her when she cries.
So please hang in there. Be gentle with yourself, be super gentle with your kiddo. Lots of love, forgiveness and patience is needed. Love you all and peace out till the next time.