Archive | July 2019

Femoral rotations and Post-Op Week Results

Yikes, I missed last week and I sincerely apologize. It’s been a tough week and I’m not going to sugar-coat it. Our trip to Children’s Hospital went anyway but smooth and the results weren’t what we had hoped or even anticipated. I’ve also been sick with the stomach flu and/or stress this past week so yeah, everything BUT Madison went on the back burner.

Our trip down was insane. The reservations we had at Extended Stay America got messed up, the guest clerk couldn’t care less that we didn’t have a place to stay and turned us back out onto the street. Despite all of that we went to the hospital sure that her post-op would be amazing. How wrong we were.

The doctor wasn’t there, which we knew before coming down. We were to see the PA. She had new x-rays taken of Madison’s legs. She wanted Madison to be off of her crutches by the time school starts in 5 weeks and wanted her walking better. This was all disappointing news because we thought she was doing great, including her physical therapist. Granted this was the first time we had ever me the PA, so I’m not sure if she is just gruff normally but she wasn’t encouraging at all and kind of crushed Madison’s pride. Madison thought she was doing great, as we all had.

Then the news from her x-rays. She has very aggressive bone growth around the breaks in her femurs. Some of the bone is lumpy and you can feel it on the outside of her thigh. If you look closely in the x-rays, you can see where it starts quite a few inches above the break, curves out (thickens) and then goes back down. Some is to be expected because her legs are healing but hers is “aggressive” and can cause problems if it continues. So we have to have more x-rays done in 6 weeks. At this point we don’t know if the severe pain she’s experiencing while walking and on her feet is just normal, bone-healing pain or if it’s the extra bone. Time will tell.

And on a last bummer note, while her feet are finally facing forward, she is walking towards the inside which is twisting her ankles. Her physical therapist is placing a call into her doctor to see if we can get orthotics to build up the inside of the bottom of her foot. If left as is, it can cause deterioration of her knees, hips and back.

On a good note, she was so determined after the comments from the PA that she ditched the wheelchair the day we got back home. She is only using crutches and trying so hard to walk without them even but she still has no balance. I see my daughter fighting so hard to get back to normal and I refuse to tell her she’s not doing enough. She’s a fighter and I won’t dampen that beautiful spirit of hers.

Until next week, I hope you take every day as a blessing and if you have any questions, please feel free to reach out. I’ll help anyway I can, as I’m learning as I go! Peace, blessings and here’s to healing legs!

Femoral Rotation Surgeries POST-OP WEEK!!

POST-OP WEEK!

We are leaving Friday to head back to Children’s Hospital! It will be the first time her surgeons have seen her since her surgeries. She has been working so very hard and I know she is going to blow them away with her progress.

As her mom, I’m a little nervous about the trip. As you remember from my first post, we had NO idea how to get her to the restroom and her comfort for the five-six-hour drive. Granted, she is so much farther along and we have the belt that the Gunnison ER nurse gave us but still a little nervous.

It’s going to be a quick trip. We are driving down the morning of her appointment, staying the night and then heading back home the very next day. No playing around on this one, though I had hoped we could have visited the zoo or something. Maybe next time.

This post is going to be a little all over the place as the few things I’m going to bring up won’t take up a full post, so I’m going to combine them. The first thing I’m going to “suggest” is that if you do find out that your child has to go through this type of surgery, you might want to consider keeping that information close to your chest. I’ve always been the type of person to wear my heart on my sleeve. I will try and give you the shirt off of my back if I think it will help you more than it will help me and for some silly reason, I think everyone I come in contact with thinks the same way. Yes, a little naïve but there it is. So when we found out about Madison and what it all entailed, I reached out to everyone. I needed help and was hoping that I would get back what I had put out there. I needed help both emotionally and physically. We had a 37-acre horse boarding ranch we were having to shut down just as we were building it up. I loved each of my boarders, spent the past two years caring for their horses, getting our name out there and now we were closing our doors. Not only were we losing almost two-hundred thousand dollars we had invested and spent on the ranch but I was losing my dream. Something I had wanted my entire life. I was dealing with a lot of guilt. Letting my boarders down, moving my family again, losing that monthly income, feeling like a failure. It’s a lot to take on alone.

Thankfully I had a week’s worth of vacation saved up from my outside employer so I took the entire week off so that we could move our household. Our landlords at the ranch had asked us to get out as soon as possible so that they could list the ranch again (we had been in a lease/purchase agreement with them but obviously couldn’t purchase the ranch with everything going on) and I wanted to honor their wishes. It would also give me a chance to unpack before going back to work and getting into a new routine.

Unfortunately, the morning I came back to work, they pulled me in the office and let me go. One week before my 1-year anniversary. I was told I wasn’t being fired, that things weren’t working out at that particular time and that “down the road, I should feel free to re-apply”. Since I’m not an idiot, I put two and two together and knew it was because of the time I was going to miss for Madison’s surgeries.

So in a matter of four weeks, we closed our business, I lost my job which included our health insurance, and moved to a rental house south of town. To add injury to insult, our landlords only gave us half of our deposit back stating that we hadn’t left the ranch in the condition we received it, which is an absolute lie. I was thankful that I had video recorded the property and the house and had proof that it was actually in better condition than when we moved in and was prepared to take them to court. But a very dear friend of mine sat me down at lunch and made some excellent points. Yes, we would win in court if I pursued that route BUT there was no guarantee that I would ever get our money back. I would have to pay the court fees to take them to court and attorney fees. Just because we got a win doesn’t mean that they would pay, so then there would be collection fees to go after them that way. I would be throwing good money after bad. Then I am still dealing with preparing for Madison’s upcoming surgeries, getting the house organized and ready for her disabilities and running her back and forth to physical therapy. There was so much on our plate that we decided to let it go.

Looking back on all of it now, we are grateful that everything happened the way it did. There was no way I could have closed the ranch down, settled our horses in their new place, got the house unpacked and prepped and had Madison to all of her physical therapy appointments had I still been

working for my outside employer and had taken our ex-landlords to court. I don’t think I could have handled Madison’s surgeries emotionally if I had invested in those other things either. Keeping it together during the hours we waited anxiously in the hospital took everything I had and let’s face it; my daughter is SO much more important than those other things. Those other things made me stronger, humbler and more grateful for the true blessings I have in my life.

I’m hoping that you don’t have people who try and take advantage of you during this difficult time. I hope your friends and family rally behind you and lift you up instead of tearing you down. I had an amazing network of friends and family who supported me and my beautiful family. I’m forever grateful to them and believe me, I plan on showing them as things settle into our new routine. For now, I’m focusing on this incredible child and the milestones she is leaping over. Blessings to you and keep on staying strong!!

Femoral Leg Rotations & Parents part 4

HAPPY FOURTH OF JULY!

Yes, we celebrate our independence and our beautiful red, white and blue flags here! We are hoping you are enjoying this holiday too and staying safe. Madison was able to stand long enough on her crutches to go visit her horse, who came running up to see her. It was a beautiful sight!

It’s been a tough week here at the Hadley household. While Madison has been doing great, she isn’t healed enough to go to her rendezvous camp-out in two weeks. Her father and I figured she wouldn’t be able to but she still had the goal in her heart and we didn’t want to crush it. We head for Children’s Hospital next week for her six-week post op. New X-rays and examination to see what’s going on.

We do know at this point that as her swelling goes down, one of the screws in her hip/femur is starting to catch on the muscle and tendons, making it difficult to do certain physical therapy activities. At this stage, we don’t know if they will have to remove it, put a smaller one in or leave it until the hardware comes out at nine months. Lots of questions for next Friday. I will let you know after next week, definitely.

What I wanted to talk to you about today is expectations and other people’s perceptions. For the most part, people in public are great and very kind but prepare yourself, physically and emotionally, for the jerks. We’ve had a little old woman glare at us and give us the stink eye when I didn’t get the handicapped tag up fast enough in my rearview mirror of my car. I’ve had more than one person run their shopping cart into my daughter’s wheelchair at the grocery store and not even bat an eye or apologize. I’ve had people who have sped their vehicles up to make it through the crosswalk so that they didn’t have to wait for her to cross and others back out of parking spaces without even looking for shorter objects.

I’m not bringing this up to point out that there are douchebags in the world, we all know that there are. I’m bringing this to your attention so that you can protect your child. When you walk, walk so that your body is protecting the wheelchair and child. Driver’s usually aren’t looking down when they are backing up or driving. They are looking for other cars, other upright pedestrians and open parking spaces. If you are there, they will see you first, the wheelchair second.

In the grocery store people are less likely to run their carts into your child if you are standing right there. Some people don’t mean to hit the chair but others just don’t care. You need to be there to try and prevent it because jarring hits like that can be very painful, especially if it’s right after their surgeries.

I also want you to prepare emotionally. It won’t do anyone any good if you are in jail for assault (let’s face it, we are all protective mommas and daddies when it comes to our kiddos) So you need to learn to be able to walk away without causing any bodily damage to someone else. Dealing with douchebags will have to wait for another time and remember, for every douchebag that’s out there, there are ten more souls who are willing to do anything to help you and your child. Recognize, focus and be thankful for those positive people. They are out there and they exist, it’s OKAY to lean on them. We are all here for each other.

Now go grill something, have some fun with your family and watch those beautiful fireworks!